Thank you for all the comments once again. I think it might be helpful to give a reminder about what CI is - and the fact that husband suffers from it. The following list of symptoms is taken from an NHS website:-
What is a Cognitive Impairment?
Cognitive Impairment is the medical term for problems with any aspect of thinking ability.
Symptoms of a Cognitive Impairment can include:
Memory problems
Understanding
Reasoning
Organizing
Problem solving
Decision making
Attention
Difficulty interpreting the world around (visual-spatial skills)
Speech and language
Husband has all of the above. He was clinically diagnosed with CI around 4 or 5 years ago, following a brain scan and a series of cognitive tests conducted by a consultant psychologist, which I attended with husband having been asked to by the psychologist. He also has a number of behavioural changes too - apathy, indifference, lack of empathy, inappropriate talk and behaviour, delusional ideas and obsessional behaviour. The psychologist explained to me that CI can be, although not always, a precursor to various forms of dementia - whilst not everyone with CI automatically goes on to develop dementia, many do - people with CI are statistically much more likely to develop some form of dementia - there are many types although everyone generally thinks of Alzheimers first.
Husband has historically always been known for being very laid back, easygoing, very humorous (life and soul of the party), very kind and helpful, very industrious - he'd always worked hard, both at work and at home. That man who I was married to for decades has pretty much vanished, being replaced with a virtual stranger who I no longer recognise, except for very brief flashes. He's now obstinate, argumentative, confrontational, lazy, tells lies, with a short term memory that is completely shot to pieces. Oh and did I mention obstinate? - that's one of his most annoying traits.
So 'normal' requests for husband to do something don't really work. Nor does writing a list of jobs, as some of you have suggested - I've tried that and it just doesn't work. In any case, he's also severely dyslexic so reading/writing aren't easy for him.
The past couple of days he has actually done a few little jobs I've requested, with a few reminders and some firmness on my part. Persistence and standing firm is the key, but in a calm manner. Adjusting my own behaviour is also necessary - I basically need to stop doing everything myself simply because it's quicker and easier and avoids the grumbles, complaints and arguments I get from him. But then I'm left feeling resentful and frustrated, which ends up spiralling.
Life is not easy nowadays, hasn't been for a couple of years as husband's CI has progressed. However, I'm determined to try and improve things, for both of us, this year....or the reality is I'll end up having a breakdown or walking out.
I know it's not easy for you, Sooze. The man that you married is disappearing and that's sad, scary and grossly unfair. You're making the right decisions, though, looking after your own health (mental and physical). I know that's something that many carers find difficult. If only I lived close enough to be of some practical help, even if it was just to take you out somewhere for a coffee and a debrief! xx
ReplyDeleteThanks K, you're a good friend. I'm ok, January is a good month for me so I'm feeling quite positive 👍 xx
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DeleteHe needs to be in a nursing home if it's too much for you. You don't have to be a màrtyr.
ReplyDeleteHe's not nursing home standard, nor is it too much for me, these are some way off yet. And I'm not a martyr.
DeleteYou have my sympathy, and I know it's not easy for you even on the 'good' days. It's so sad when the personality you knew so well disappears, and you miss them hugely. As you rightly say, you can't change your husband and so all that's open to you is to change how you approach it all if you can. Easier some days than others, of course...
ReplyDeleteYou need a break, contact his social worker or age concern others may be better informed than me who can help. When my children were young I helped to run a monthly club for OAP entertainment and afternoon tea, this was done through the church and I drove the churches minibus to pick up people. You need help and there are volunteers out there who can help.
ReplyDeleteYes, yes, yes. You are so articulate in your writing Sooze. That sad description is my husband, and it is bloody sad. Thankfully by writing more people will have a better understanding of our lives and many like us. Eternally grateful. June xx
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