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Thursday 24 November 2022

At last some help

 Well, my meeting with the Age UK advisor was very productive.....Angela was a really lovely, kind and extremely helpful lady who bent over backwards to try and help.  She said my social housing application was fine, and then we moved onto financial matters.  In her opinion, husband will almost certainly be eligible for Attendance Allowance, which could then open the door for further benefits.  She gave me lots of tips for filling in the AA forms, such as ring the helpline and ask for a form to be sent out rather than filling it out online.....the reason being, if you fill out a paper form and send it off straight away, it is date stamped upon receipt and any successful claim will be backdated to that date.  Whereas if you do it online, the form will hang about for weeks and weeks before it gets passed to the right department and will only be dated from the date it actually reaches that department, not from when you submitted it!  And delays are currently around 4-8 weeks....meaning if you're successful, you will lose out on several weeks of payments.  She also said to give Age UK a ring when I receive the form, and she or one of her colleagues will come out to our home and help me fill it in.  She said it's important to fill out all sections as if it were husband's worst day, but she said not to worry, she or whoever comes will help with that.  She had lots of other useful tips and information, she couldn't have been more helpful.  I feel much more positive now I'm finally getting some help and support.  

The session was held in a local village hall where they also have a drop in coffee and cake morning for everyone who has memory problems, for whatever health reason, and their carers, with plenty of helpers to discuss things with, it was being held whilst I was seeing the advisor.  Whilst I could go to it if I wanted (husband most certainly wouldn't), and everyone working or volunteering there seemed incredibly nice (e.g. I was welcomed and offered a cuppa and slice of cake as soon as I walked in), it's not really my thing.  The room was full of mostly old people (aged 75+), around 2 dozen women with a couple of men, with a very few younger women, perhaps 3 or 4, who were clearly daughters, or possibly carers.  So really it was like a seniors social club.  As old as I am (63), I don't actually consider myself old yet!  One of the organisers was trying to give a talk and some important information about an upcoming event, but kept getting interrupted by the 2 old men, cracking 'jokes' and making stupid comments......why is it always men who do that?  And why do they feel the need to prove they're hilariously funny and smart?  (They're not).  So it's not something I'll be attending.

Today husband has his telephone pre-op assessment, postponed from last week because the nurse was off sick.  He's not been given a date for the angiogram yet, perhaps they'll tell him today on the phone.  I wish they'd hurry up about it, I need to make arrangements for someone to take him to the hospital and pick him up again when he's ready to come home.  I shall also need to make sure I've got enough shopping in, or do it online or get a neighbour to take me, and rearrange any appointments either of us have around that time, as husband won't be able to drive for a while.....how long for depends on what he has done.

I've had my diabetes review results online, all seems fine, not much change from last year, but I still have to go see the nurse next week to discuss it all.  I also have another problem which I need to discuss with her, it may or may not be diabetes related - my fingers and thumbs, from the first or second joint, keep going completely white, bloodless, freezing cold and painful, which makes it a bit difficult to do anything using my hands until it wears off.  I had a work colleague who had this, it was Raynauds Syndrome in her case and I think was related to her rheumatoid arthritis.  It's not a major problem (just another one to add to the ever-growing list!!), more of an annoyance really.


13 comments:

  1. That all sounds positive. I remember the Attendance Allowance form was a bit of a bugger to fill in, but if you can have someone there to help you, that'll be great. The coffee and cake thing sounds more like it's for people with dementia and their carers. I wonder if they have other sessions there, though, that would be more your thing. My local church has a knit and natter group and another has an art group. Might be worth investigating. xx

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  2. Well done Sooze, youve done a big step forward in making your life better . Attendance allowance is good and Age concern helped me wirh it for my husband. I'm so proud of you and sending hugs and love from Vall aand Poppyxxx

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  3. I also suffer from what I believe is Raynauds. So far it affects just my little finger so I've not sought any advice yet. It's a strange phenomenon that's for sure. I'm also type 2, but am now a very thin type 2 so I feel the cold easily.

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  4. I have had Raynaud's Syndrome since I was 14 and your symptoms do sound like that. When there is a change in temperature (it could just be going from one room into another) that can trigger it for me. It is because the capillaries narrow so the blood can't get down to the fingers. I wear fingerless gloves a lot which does help but I have to shake my hands to encourage the blood back down again. It is important to get the blood back down into the fingers as soon as you can. Apparently for severe cases, viagra has been used successfully - it is about increasing the blood flow (!) The nhs site is a good place to start for further info - https://www.nhs.uk/conditions/raynauds/
    Best wishes
    Ellie

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  5. So pleased to hear the advisor was helpful and pleasant, such a good tip about filling in a paper copy of the form too, I shall pass that one one, thank you.

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  6. What a difference seeing someone that knows all about 'the system' can make to filling in forms and actually claiming what you are entitled to, it sounds as though that meeting with Angela was worth it's weight in gold.

    I have had Raynaud's Syndrome since I was a teenager, with me it was always the whole of my middle fingers and middle toes that went completely white and lifeless looking. It's triggered by your core getting cold and also sometimes by touching cold objects. I used to have to wear gloves to hoover as back in the day I had a vacuum cleaner with a metal handle and tube, and also when I wanted to get a lot of frozen food shopping. I used to wear gloves and thick socks thinking that would help, but these days since I learnt the lesson about keeping my body instead of my extremities warm I don't have that problem anymore and it rarely happens now.

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  7. I have a coworker with Raynaud's Syndrome. She has a space heater ( not safe) in her cube space because her fingers and toes were always cold. Your appointment sounds like a positive step in right direction.

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  8. I would advise you to send the attendance allowance form by track and trace/recorded delivery as a friend recently sent hers in and they said they hadn’t received it, even though it had been signed for at the dwp office. It miraculously appeared a day or so later.

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  9. I am so happy for you and the progress you are making. Keep going, and keep your chin up. You have to advocate for yourself because there is no one else who will do it for you. Hugs to you.
    JC In USA

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  10. Sounds like a plan. I am really old…lol

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  11. I am so glad that it was such a positive experience and that you have someone on your side who will help you with filling in forms, etc. A big step forward. xx

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  12. YES,someone to help who knows the ins and outs of things. I always feel better when someone can translate all of the nonsense to sensible. :)

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  13. So glad that this was a positive experience for you. I am very glad that you are getting some help.

    God bless.

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